Research Survey Participation

Name of Study: A survey of the current outcome measures and treatment practices used by
Occupational Therapists, Physiotherapists and Speech and Language Therapists working
with people living with ALS/MND

PhD students in the MIRANDA (Multidisciplinary Innovation and Research Advancing Neurological care in a Digital Age) programme in the Academic Unit of Neurology, School of Medicine in Trinity College Dublin, Avril McTague and Lesley Doyle are conducting a survey titled ‘The current outcome measures and treatment practices used by Occupational Therapists, Physiotherapists and Speech and Language Therapists working with people living with ALS/MND’. 

Avril and Lesley would like to hear from qualified Occupational Therapists, Physiotherapists and Speech and Language Therapists who have experience working with people who have Motor neurone disease (MND). This study has been approved by Trinity College Dublin’s School of Medicine Research Ethics Committee.  

Participation in this study is voluntary, responses are anonymous, and the survey will take 15-20 minutes to complete. The survey will close on 17^th December 2023. 

Below is the link to the survey: 

https://scsstcd.qualtrics.com/jfe/form/SV_a5eEUYlQbhHL6Xc 

Please share this survey with your Occupational Therapy, Physiotherapy or Speech and Language Therapy colleagues. The researchers are aiming to gather as many responses as possible from therapists working in different countries and from a range of settings such as hospitals, hospices, and community-based care settings.  

See the attached participant information leaflet for more information on the study. Alternatively, please feel free to contact Avril or Lesley at mctaguam@tcd.ie or doylel17@tcd.ie if you have any other questions.  

Thank you for taking the time to complete this survey.  

Aisling O’Neill

Research Programme

All Ireland Institute of Hospice and Palliative Care